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Palliative and End-Of-Life Care: Home

Collection of information sources and resources on Palliative and End-of-Life Care

Palliative & End-of-life Care - Keeping up to date

These pages provide an overview on resources for healthcare professionals and researchers who are working, researching or have an interest in Palliative and End-of-life care.                           

                    

                                                                             

 

Palliative & End-of-Life Care in the news

Ireland 

Compassion in Irish Hospitals – HSE consolidates the Hospice Friendly Hospital ProgrammeeHospice (Ireland ) Aug 18  

People in Irish nursing homes face ‘cruel and degrading treatment’  – Irish Times [online]July 27    

Charlie Gard to be sent to hospice today where life-support treatment will endIndependent [online] July 27

It’s ok to talk about infertility, termination, miscarriage –  Irish Times [online] July 25       

Charlie Gard unlikely to spend final days at home – RTE [online] July 25 
 
Dr Ciara Kelly: 'Denial isn't all bad - it helps you to function and get through grief'  –  Irish Independent [online] July 24    
    

   
International  

When life is a fate worse than death – podcast – The Guardian [online] July 28     

How Bureaucracies Creep Into Life-and-Death Medical Decisions – Bloomberg [online]July 27      

Charlie Gard parents 'denied final wish' for more time – BBC News [online] July 27     

Last conversations with loved ones: our readers share their stories – The Guardian [online] Jul 26 

Virtual Reality Offers New Experiences to Patients in Hospice – Oncology Nurse Advisor [online] July 26 
   

Recent Research Articles

**Irish Research 

New Reports 

**Survey of Bereaved Relatives: VOICES MaJam - Views of Informal Carers
– Evaluation of Services (VOICES) Mater Misericordiae University Hospital and St. James’s Hospital (MaJam)
Extract;
End-of-life care is an experience that touches the lives of everyone on a personal or professional level. Of all people that will die in Ireland this year, 43% will die in adult acute hospital settings. Acute hospitals are busy places with a predominant focus on diagnosis, treatment and cure. However, caring for people who are seriously ill is also an important responsibility. The Mater Misericordiae University Hospital and St. James’s Hospital are striving to ensure that people who are diagnosed with a life-limiting illness or who die in our care, experience a place of sanctuary where they are cared for in comfort and dignity and their families are supported in their bereavement. The Mater Misericordiae University Hospital and St. James’s Hospital have targeted end-of-life care as an area for improving the quality of care for patients and their families. To enable this, both hospitals have actively sought to improve end-of-life care through their active participation in the Hospice Friendly Hospitals Programme, an initiative of the Irish Hospice Foundation. Measuring the quality of care provided is recognised as being fundamental to quality assurance and provides information to further enhance patient and family care. This study sought to ascertain the quality of care provided to patients and their families during their last admission to hospital from the perspective of bereaved relatives. READ FULL REPORT >>>

**De-Stress - A study to assess the health & wellbeing of spousal carers of people with dementia in Ireland.
Extract;
The De-Stress study set out to gather informationabout the health and wellbeing of family memberswho are carers of people with dementia. It was co-funded by the Health Research Board and The Alzheimer Society of Ireland through the Medical Charities Research Group grant scheme and carried out by researchers at Trinity College Dublin.
READ FULL REPORT >>> 

New Articles 

**The provision of generalist and specialist palliative care for patients with non-malignant respiratory disease in the North and Republic of Ireland: a qualitative study

Abstract; Background; Previous research and key guidelines have suggested potential models of palliative care for patients with COPD and interstitial lung disease. However, these recommendations are often not effectively implemented in clinical practice and are void of guidance regarding palliative care for patients with bronchiectasis, another form of non-malignant respiratory disease. The aim of this research was to explore generalist and specialist palliative care service provision for people with non-malignant respiratory disease in the North and Republic of Ireland. OPEN ACCESS ARTICLE – READ FULL TEXT >>> 

eHospice Ireland

eHospice Ireland delivers daily updates on news, research and events related to palliative Hospice and end-of-life care in Ireland.   

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Palliative Care - PubMed Filtered search

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Palliative Care Twitter Feed

Feed from @IrishHospice twitter list of hospice & palliative care practitioners and organisations   

Librarian

Laura Rooney Ferris's picture
Laura Rooney Ferris
Contact:
Systems Librarian
Dr Steevens Library
Dr Steevens Hospital
Dublin 8
Website

Definitions and Glossaries

Definitions of Palliative & End-of-life care 

Useful Websites

National Clinical Programme for Palliative Care

This HSE  & Royal College of Physicians joint programme was established in 2010. The palliative care clinical programme aims to improve access to palliative care for all people with life-limiting conditions and their families regardless of care setting or diagnosis. 

British Medical Association - End-of-life care reports 

Reports and results of a project by the British Medical Association to examine public and medical professionals' attitudes about issues related to end-of-life care and physician-assisted dying.  

Cochrane Collaboration - Key resources on end-of-life care

A collation of key evidence and reviews from the Cochrane collaboration on issues related to palliative and end-of-life care  

Dr. Steevens' Library. Health Service Executive. Dr. Steevens' Hospital, Dublin 8. Tel: 01-6352555/8. Fax: 01-6352557. Email: regionallibrary@hse.ie

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