These pages provide an overview on resources for healthcare professionals and researchers who are working, researching or have an interest in Palliative and End-of-life care.
Abstract: Aims To explore the integration and delivery of oncology led referrals to palliative care (PC) by examining physician attitudes and referral practices. Methods An online survey was circulated to oncologists and PC physicians in Ireland. Results The study (N = 100) comprised sixty-nine oncologists (69%) and thirty-one PC physicians (31%). Ninety-two(92%) believe patients with advanced cancer should receive concurrent treatment, however only 53% of oncologists(N = 37) routinely refer. Regarding end-of-life (EOL) care: 81% of oncologists (N = 55) are directly involved in its administration, despite 84% (N = 53) agreeing patients benefit when PC specialists coordinate EOL care. Conclusion The gulf between positive attitudes and limited implementation suggests the need for interdisciplinary changes to facilitate integration of PC in clinical practice in Ireland'
Abstract: Internationally there is an increasing concern about the quality of end-of-life care (EoLC) provided in acute hospitals. More people are cared for at end of life and die in acute hospitals than in any other healthcare setting. This paper reports the views of bereaved relatives on the experience of care they and the person that died received during their last admission in two university adult acute tertiary hospitals.
Abstract: Background: Nurses are the largest professional group in healthcare and those who make more decisions. The Guide does not mention nurses explicitly. Three qualitative datasets including 32 interviews from previous studies with nurses working in palliative care in Portugal. Ethical consideration: Communication also emerged as a sensitive ethical issue; it is surprising, however, that only three nurses referred to it. Conclusion: While the Guide does not explicitly mention nurses in its content, this study shows that nurses working in palliative care in Portugal are involved in these processes. Further research is needed on nurses' involvement and practices in end-of-life decision-making.
Research shows that formal and informal social support can facilitate resilience in carers. There is a paucity of research exploring social support and resilience amongst recently bereaved informal carers. Social support for carers providing end of life care is almost exclusively based around end of life care ‘work’. In comparison to other research our study suggests that relationships with family and health professionals are paramount. Multidimensional support is needed for carers to enhance their resilience.
More Americans Are Dying at Home Than in Hospitals - The New York Times 11 December 2019
How visualising death can help us accept it – video, The Guardian 12 December 2019
LETTER: Restored our faith in humanity and the health system - Southern Star
Death does not need any euphemisms - The Guardian
Doctors are torturing dementia patients at the end of their life. And it’s totally unnecessary - Washington Post [opinion]
Edinburgh to light up for hospices - Third Force News
The ‘chronic sorrow’ of knowing your child will die - The Irish Times, November 5th
End of life carers should have six months paid leave, say experts - University of Sheffield, November 4th
‘I’m organising assisted dying as I lost my wife to motor neurone disease’ - The Guardian, November 2nd
Let down by 'agonising' end-of-life care, BBC, October 23rd
This HSE & Royal College of Physicians joint programme was established in 2010. The palliative care clinical programme aims to improve access to palliative care for all people with life-limiting conditions and their families regardless of care setting or diagnosis.
Reports and results of a project by the British Medical Association to examine public and medical professionals' attitudes about issues related to end-of-life care and physician-assisted dying.
A collation of key evidence and reviews from the Cochrane collaboration on issues related to palliative and end-of-life care
National Health Library & Knowledge Service. Health Service Executive. Dr. Steevens' Hospital, Dublin 8. Tel: 01-6352555/8. Email: email@example.com